Kisala PA, Tulsky DS, Choi SW, Kirshblum SC, et al.
The journal of spinal cord medicine. Date of publication 2015 May 1;volume 38(3):303-14.
1. J Spinal Cord Med. 2015 May;38(3):303-14. doi: 10.1179/2045772315Y.0000000017.
Development and psychometric characteristics of the SCI-QOL Pressure Ulcers scale
and short form.
Kisala PA, Tulsky DS, Choi SW, Kirshblum SC.
OBJECTIVE: To develop a self-reported measure of the subjective impact of
pressure ulcers on health-related quality of life (HRQOL) in individuals with
spinal cord injury (SCI) as part of the SCI quality of life (SCI-QOL) measurement
system.
DESIGN: Grounded-theory based qualitative item development methods, large-scale
item calibration testing, confirmatory factor analysis (CFA), and item response
theory-based psychometric analysis.
SETTING: Five SCI Model System centers and one Department of Veterans Affairs
medical center in the United States.
PARTICIPANTS: Adults with traumatic SCI.
MAIN OUTCOME MEASURES: SCI-QOL Pressure Ulcers scale.
RESULTS: 189 individuals with traumatic SCI who experienced a pressure ulcer
within the past 7 days completed 30 items related to pressure ulcers. CFA
confirmed a unidimensional pool of items. IRT analyses were conducted. A
constrained Graded Response Model with a constant slope parameter was used to
estimate item thresholds for the 12 retained items.
CONCLUSIONS: The 12-item SCI-QOL Pressure Ulcers scale is unique in that it is
specifically targeted to individuals with spinal cord injury and at every stage
of development has included input from individuals with SCI. Furthermore, use of
CFA and IRT methods provide flexibility and precision of measurement. The scale
may be administered in its entirety or as a 7-item "short form" and is available
for both research and clinical practice.
DOI: 10.1179/2045772315Y.0000000017
PMCID: PMC4445021
PMID: 26010965 [Indexed for MEDLINE]
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