Stenberg U, Haaland-Øverby M, Koricho AT, Trollvik A, Kristoffersen LR, Dybvig S, Vågan A, et al.
Health expectations : an international journal of public participation in health care and healt.... Date of publication 2019 Oct 1;volume 22(5):849-862.
1. Health Expect. 2019 Oct;22(5):849-862. doi: 10.1111/hex.12906. Epub 2019 May
26.
How can we support children, adolescents and young adults in managing chronic
health challenges? A scoping review on the effects of patient education
interventions.
Stenberg U(1), Haaland-Øverby M(1), Koricho AT(2), Trollvik A(3), Kristoffersen
LR(1), Dybvig S(4), Vågan A(1).
Author information:
(1)Norwegian National Advisory Unit on Learning and Mastery in Health, Oslo
University Hospital, Oslo, Norway.
(2)Learning and Coping Center, Oslo University Hospital, Oslo, Norway.
(3)Institute of Nursing, Faculty of Public Health, Inland Norway University of
Applied Sciences, Elverum, Norway.
(4)Celebral Palsy Young, Oslo, Norway.
OBJECTIVES: This scoping review aims to give a comprehensive and systematic
overview of published evaluations and the potential impact of patient education
interventions for children, adolescents and young adults who are living with
chronic illness and/or impairment loss.
METHODS: Relevant literature published between 2008 and 2018 has been
comprehensively reviewed, with attention paid to variations in study,
intervention and patient characteristics. Arksey and O'Malley's framework for
scoping studies guided the review process, and thematic analysis was undertaken
to synthesize extracted data.
RESULTS: Of the 7214 titles identified, 69 studies were included in this scoping
review. Participant-reported benefits of the interventions included less
distress from symptoms, improved medical adherence and/or less use of
medication, and improved knowledge. The majority of studies measuring physical
activity and/or physiologic outcomes found beneficial effects. Interventions
were also beneficial in terms of decreased use of urgent health care,
hospitalization, visits to general practitioner and absence from school. By
sharing experiences, participants had learned from each other and attained new
insight on how they could manage illness-related challenges.
DISCUSSION: Study results corroborate previous research suggesting that
different types of patient education interventions have a positive impact on
children, adolescents and young adults, but research on this field is still in a
starting phase. The results summed up in the current review supports the utility
of patient education interventions that employ behavioural strategies tailored
to the developmental needs of children, adolescents and young adults with
different cultural backgrounds.
© 2019 The Authors Health Expectations published by John Wiley & Sons Ltd.
DOI: 10.1111/hex.12906
PMCID: PMC6803408
PMID: 31131527 [Indexed for MEDLINE]
Conflict of interest statement: There are no financial or other ties involved in
the present work that might lead to a conflict of interest.
